And you all think I'm crazy....

When i was at the doctors they saw my zebra print bag cover and commented on it. That got us started talking about things people do when they have a bag. Safar had the most creative (but a bit disturbing) thing i had ever heard. He said he has a patient who has a liquid output so he put plastic fish in his bag and he tells people it is his portable aquarium....no worries i won't start that one.

On other news things seem to be going really well for me. We got the leaking bag under control. We also had a friend from church have his colon removed due to cancer and he is doing really well. We went up to see him yesterday and was surprised how well he was doing and getting around.

God is good!!!

i see the light at the end of the tunnel!!!!

Doctors appointment went really well. He wants to do two tests that will fill the j pouch and check for leaks as well as a ct to check for fluid collections. He also wants the gi doctor he works with to scope me and she wants to do a mri of the small intestine. The scope and mri is set up for February 20 and then i will go see her for results 2 weeks later. I am hoping to set up all the other stuff for the same days to minimize trips to stl. Once everything comes back i can finish this off with my 12th surgery!

one down one to go

Home health came out today and couldn't put back on the wound vac because there wasn't a hole to put the spung into. We will wait for the official word from the doc but i am Oscar free!!!!!!

the good the bad and the gross

The good: Oscar, my wound vac, and I are getting along wonderfully. They are coming out every 3 days to change it and every time it is visibly smaller. It started at 2.6cm deep and when they measured it last it was .9cm. It has also gone from the size of a half dollar to the size of a dime. It will be changed tomorrow and Monday then Wednesday i go see the doc and i think he will take it off for good!

The bad: i can not keep a seal with my bag. I got a new batch of supplies just before Christmas and i am almost out. I won't be able to order new ones until the 19th due to insurance. If that wasn't bad enough i have to pay the deductible all in one go because i have to pay it before they will release the supplies.

The gross: because i can't keep a seal that means i am washing out a lot of very gross wash cloths and towels. I can't wait to be able to throw out all my disgusting stained washcloths and use the nice ones i got as wedding gifts.

that better

I finally got the wound vac on Thursday. The nurse came and changed it today and other had already shrunk the wound down from the size of a half dollar to the size of a quarter. Things are finally looking up.

...and waiting...

Called home health today. The wound vac company is still waiting for some information from the doctor. The nurse is going to call and bug them tomorrow for me. Mom and Amanda are going to go have lunch with my grandma tomorrow and i would like to go but i will probably have to stay here and wait for them to get their act together..... I almost wish i didn't like my doctor because his staff has a hard time getting everything done...

still waiting

Merry Christmas to anyone who reads this

we are still waiting for the wound vac to show up. If i don't hear anything by noon i will start calling people again. Beyond that there isn't much to report about my health so will just tell the world about my Christmas.

Drew told his parents Friday i wasn't feeling very good so they decided to bring part of the lunch to us so Saturday night we went to church and then my sis and i did a few things to make today a little easier. Today we got up early and did stockings. Santa forgot about me so he just collected random things and put them in. I can't complain too much, i think i got more stuff then anyone else. Drew gave me a popcorn popper and a gift card so i can finally go get curtains for the living room and from my sisparents i got a new pan set and comforter among other things. After gifts and breakfast with the parents we had church then lunch with both sides of the family. Drew parents gave us some random but awesome stuff. Lets just say we are stocked up on wii games for awhile. The rest of the day has been spent hanging out playing games and doing a little baking and a lot of eating. It has been nice to feel good when i didn't think i would....it has been the best first Christmas being married to drew!