I'm still alive and kicking

I am still feeling pretty good. The last couple of days I have had a headache but that could be anything. Last week I went and had blood work done and things looked good. My red cell count was up to almost normal people range and my white cell count was just above normal so things are good in that department. I go back to see the doc in a couple of weeks and then we see when I get to be reconnected!

I've made it a week!!!

This last week has been an interesting one. I am feeling much better but I forget how easy it is to get tired. Everyday this last week I have had to be up at 7 to get IV stuff ready so my Dad can hook me up on his way to work then my Mom came up and changed me over to the other one an hour later. Then I get to do it again (without Dad) at 2pm and again at 10pm.

Saturday my "fun" drainage tube fell out on its own so sitting became instantly easier and church on Sunday became possible to sit through. Monday I went to the doctor. He said he thought the cavity the abscess was in was finally shrinking meaning it is healing up. I have to go back in a month to do a scope and he will set up a pouch study to make sure my J Pouch is good then we can set up the reconnection surgery...It should be mid September.

Yesterday home health came out to change my PICC dressing. Had a little problem with that because my bag started leaking so I had a change it at the same time the door bell started ringing. In the end it took me almost an hour to change it while the nurse waited for me, I felt a little bad but there was nothing I could do about it...at least my stoma is working like it should. Today another nurse came out to pull the PICC and discharge me so I am officially free for now so I am hoping things will get back to semi normal. Somehow I don't thing that is going to happen...things are never normal for me :)

Lets try this again

I got the official word that I get to go home today. They are trying to get everything together so that I can get home by 2 so home health can come in and give me my afternoon IVs. I really need to go buy food so I hopefully we will have time to make a wal-mart stop first. The biggest trick will be not to come back till my final surgery and to get out fast after that...we will see :)

Not Today

Melissa doesn't get to go home today. Her White cell count has gone up a little. They are giving her antifungal meds now. Perhaps tomorrow.

Good News

Melissa is starting to do better. They changed the antibiotic and the white cell count has started to drop. It has gone down 5 points each of the last two days. They want it down some more before they will let her go home but perhaps in a day or two.

She is having a pic line put in today because the antibiotic is so strong it is hard on the veins. She may have to come home with it to finish the meds. the doctor told her she will need to take it for longer than she would be in the hospital if she gets to go home soon. We can handle that with a home health care nurse. We did last year.

She is eating alot, like every two hours she is hungry. She is always talking about food. She even took a trip to the cafeteria last night between 1:00 and 3:00am.

I'm back

I finally got bored enough to get out my computer on my own. I have been running a low grade temp today. I think I have probably had it for a while but the thermometer in my room has been broke and they just got it fixed today.

The Doc said that if I wasn't feeling any better in the morning they would do another CT and see whats going on. He asked me if I wanted to go home and I told him I did, I just didn't want to have to come back so they kept me.

Like mom said, eating is no longer a problem for me. I have been eating between meals like crazy. For some reason I have been craving salt and cheese so logically nachos sounds good all the time so if you come to see me bring taco bell :)

One Month

It has been one month since Melissa's first surgery. She is doing ok after the last procedure. She thought she was going to get to go home today but she is in some pain and her white cell count is up and her hemoglobin is down. The doctor wants to keep her rather than sending her home and her coming back.

She is eating well. In fact it seems like it takes a lot to feel her up.