Realized it had been a while since we have updated. Melissa has been home just over a week now. We did take her to the ER at Barnes downtown (what an experience) on Friday night. Her stoma is eating the tube that travels down it. Mostly it means that her intestines are working the way they should. Melissa called and talked to the on call doctor. She expressed enough concern that Melissa felt she should have it checked out. We left about 6 PM Friday night and got home at 6:30 AM Saturday morning. They didn't do much but take out 2-3 cc of saline and pull the tube up and then put back in the saline. The doctor gave her a syringe so she can do it herself at home.
Home health care dismissed her today since she is doing most of her own care and there is not anything they can teach her. She could probably teach some of them. She still needs to have certain levels monitored through blood test because of being on meds and having blood clots in her arm. She also has her central line in still and needs that dressing changed once a week. We will have to find out where she needs to have that done.
Melissa does tire easily but is taking some short trips out and about. She is also eating well although we think she is still losing a little weight. Her stoma is higher up so she has little intestine for digestive purposes. She will get to try on her wedding dress for the first time Tuesday. Each day she is trying to do a little more which is good since the wedding is only 4 weeks away now.
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