I got the medicine problem settled. There is one pharmacy in Columbia who sells liquid Vanco. They had to get some kind of approval from the doc for insurance but they said if I could pay for it they would refund me what insurance did pay. It was only $135 so I'm not to worried. In other news Drew is now sick. We thought maybe it was mono because I am really tired too. We both went in and saw the nurse practitionar today. She didn't think it was mono but had us do the blood work to check. She did a flu test on Drew and it came back negative so who knows whatsoever wrong with us. We will see how we feel tomorrow.

So frustrated

Thursday I got a call mid day saying the stool sample came back negative for C-diff. I asked if I should take the vancomiacine or cipro. She didn't know so they were going to have to talk to the doc and call me back. I waited for the rest of the day and herd nothing. Drew started calling him today and on the second call they told him that I knew what I was suppose to do but he finally got the nurse to call me. The doc decided to put me on vancomiacine. After the parade we went out to Wal-mart and they didn't have any. They called every pharmacey in town and noone had it. Finally they found some at Killgores in Columbia but they only had name brand. The nice lady at wal-mart then ran it through our insurance and it was going to be around $1100. For the generic it was still going to cost $450. The sad part is if I could get myself admitted to the hospital it would be free because I have hit all max out of pocket costs. I am going to call Monday and see if there is something else I can take. I also keep thinking back in the day they told me the generic doesn't work as well but I could be wrong about that. What do you do just go ahead and pay it? I just keep thinking what if it doesn't work? Its not like they will refund my money if it doesn't work like it should. Meanwhile the diarrhea had gotten worse and I also have really bad gas. It doesn't hurt but I can feel it as it moves into my pouch and it is uncofortable. I am actually sitting up because I kept having to get up. Today is one of those days that Felix looks like a good deal....

I didn't get better over the weekend so my gi doc decided to do a stool sample yeasterday and a Sig flex today. He is pretty sure I have C-diff again. We have to wait for the stool sample to come back to make sure. If it is I have the perscription to get the right antibiotic.

I am getting really bad about posting. It is such a pain to do it from my phone but thats what I have. The antibiotic helped out a lot but the last couple days I was on it I seemed to stop responding to it. My last day taking it was Monday and now I am having problems again. I keep having to get up tonight so I decided to just stay up for awhile. Tomorrow I am going to call the doc and see if I can get back on the cipro or steroids. The good news is my leg pain is getting really better. When I did some blood test my b-12 levels came back really low. I have to do shots for 8 weeks. Maybe it will help my energy too although I have never noticed a difference when I've got them before.

Some of you may have heard I was having problems again and that is true. Tuesday night right before going to bed, I ended up having some bright red blood when I went to the bathroom. We called the doctor on call at the hospital and she told us that it was normal but if it increased to a cup of blood in one hour we needed to go in. The next day I called Dr. Safar and he decided he wanted to see me next week. The blood continued throughout the day and my frequency of using the bathroom increased. That evening I ended up going 5 times in an hour and every time there was more and more blood. We called Barnes again and they still didn't seem to concerned. The doc did tell us we might want to go to the local ER to have my blood levels checked out. Drew and I decided to head to Boone because they would have the type of doc I needed if something was wrong. By 3 am they had decided I had pouchitis and gave me a cipro (antibiotic) and a percription for 10 days worth. Thursday we called to follow up and they decided to have me come in at 1. The problem is it was already 11:20 and it takes over 2 hours to get there. It didn't really matter we still had to wait 2 hours. Basically it was a huge waist of time. All we really learned is I am probably drinking to much water and not enough salt. I am feeling better. I'm not having to make as many trips to the bathroom and the blood has decreased. The best part is I am finally able to sleep through the night! Monday I go see my gi doc in Columbia and I have an appointment with Safar for Thursday bt I don't think I will need to keep it.

My doctors appointment went well (and really Fast) today. They took my staples out, decided I should load up on more fiber, and told me if I was still going to the bathroom 20 times a day to give him a call next week and he would perscribe something to help. So I came home and ate a bowl of cereal that claims to be an excelent source of fiber with some benefiber on it and took two imodium pills. I'm still going a lot but it is a bit thicker. I really hope things start getting better soon. This being sick all the time is getting really old. My legs are hurting now too. I don't know if it is from walking more then I have been (we went to world market and target as well as walking through the hospital) or what. It feels like I need to keep moving. I'm actually out on the couch because I couldn't lay still, kept getting up to go to the bathroom, and didn't want to wake up Drew. If you have ideas either for fiber or the legs let me know.

I am starting to feel better for the most part but now I feel like I did when I had uc. My biggest problem now is my bottom hurts. It is raw from going so much, it hurts from sitting on the hard tolit seat, and it feels like I worked it out too. I am also losing weight because there isn't much I can eat and I feel better when I don't eat. Amanda is taking me to the doctor tomorrow to get my staples out.